End of life in remote, rural and island communities

Hospice UK, part of the Palliative and End of Life Care Consortium, fellow members of the VCSE Health and Wellbeing Alliance, have an opportunity for people with a life-limiting condition and unpaid carers, staff and volunteers providing care and support to people with a life-limiting condition to share their views and experiences to inform work on palliative and end of life care in remote, rural and island communities.

This new policy project aims to increase understanding of what is important to people living in rural communities at the end of life, explore the challenges and opportunities in delivering palliative care in rural areas, share learning and case studies, and make policy recommendations to improve support for people in rural communities across the four nations. To help inform the project, they are running:

• An online focus group for people with a life-limiting condition or those who have cared for someone with a life-limiting condition who live in a rural community in England.

• A survey for people living in remote, rural and island communities to share their lived experience: Complete the lived experience survey

• A survey for staff and volunteers providing care and support to people with life limiting conditions in remote, rural and island communities. We’re keen to hear from staff across a wide range of roles, including hospice and hospice care at home staff and volunteers, GPs, district nurses, social care staff, pharmacists, ambulance staff, community development workers, community hospital staff and others. Complete the staff and volunteer survey